UMIN ID: UMIN000029812
Registered date:03/11/2017
Evidence creation through nationwide surveillance of the progeria syndrome Werner syndrome and establishment of a case registration system
Basic Information
| Recruitment status | Complete: follow-up continuing |
|---|---|
| Health condition(s) or Problem(s) studied | Werner Syndrome |
| Date of first enrollment | 2016/04/01 |
| Target sample size | 200 |
| Countries of recruitment | Japan |
| Study type | Others,meta-analysis etc |
| Intervention(s) |
Outcome(s)
| Primary Outcome | (This is a patient registry.) We will clarify current disease profile, natural history and prognosis of WS in Japan through the results of this research and improve patient data accuracy and use effectively, and improve medical system for WS. We will be able to rescue patients who do not have appropriate medical treatment and support patient's prognosis improvement and reintegration by improving the quality of medical treatment. |
|---|---|
| Secondary Outcome |
Key inclusion & exclusion criteria
| Age minimum | Not applicable |
|---|---|
| Age maximum | Not applicable |
| Gender | Male and Female |
| Include criteria | |
| Exclude criteria | N/A |
Related Information
| Primary Sponsor | Ministry of Health, Labour and Welfare |
|---|---|
| Secondary Sponsor | |
| Source(s) of Monetary Support | Ministry of Health, Labour and Welfare |
| Secondary ID(s) |
Contact
| public contact | |
| Name | Masaya Koshizaka |
| Address | 1-8-1 Inohana, Chuo-ku, Chiba City, Chiba, Japan Japan 260-8670 |
| Telephone | 0432262092 |
| overslope@chiba-u.jp | |
| Affiliation | Chiba University Graduate school of medicine |
| scientific contact | |
| Name | Koutaro Yokote |
| Address | 1-8-1 Inohana, Chuo-ku, Chiba City, Chiba, Japan Japan |
| Telephone | 0432262092 |
| kyokote@faculty.chiba-u.jp | |
| Affiliation | Chiba University Graduate school of medicine |